First Treatment

Friday morning we woke at 5:00am to start our first, of many, trips to Lansing for Luke's treatment.  Our appointment was at 8:00am but we needed to get there early in order to complete the admission paperwork, etc.  We really didn't know what to expect with this first treatment, how the day would transpire, or how Luke would respond to the medicine (Myozyme).  We did a lot of hand holding during the trip and Luke was a great passenger for being so early in the morning. 


The children's outpatient center was pretty easy to find (with the help of some nurses) and we were shown to our "area" right away.  The area we were in was pretty open to other patients and was more like a triage unit than individual rooms.  We were a little concerned about spending our day comforting Luke in this open environment.  Our "room" had a TV mounted on the wall and was set up with 2 recliner loungers.  They also brought in a crib for Luke which looked more like a cage (there was no way he was sleeping in that thing). 

Call for Prayer

Dear Friends,

Here I am again asking for your continued prayers.

A few years ago a came across this bible verse from I Thessalonians 5:16-18.

Be joyous always, pray continuously, give thanks in all circumstances. For this is God's will for you who belong to Christ Jesus.

I decided then that this would be by life verse and that I wanted to live by these words always. Luke has helped our family to do just that. This disease and treament will be a lifetime battle that will keep us in constant prayer. The doctor told us that there is the possibility that Luke's body will accept this treatment for a while (months, years) and then start to reject it. That's one way to have us pray continually. We are joyful for every day we have with him and all our children. And we are also very thankful for where this situation has brought us...to our knees. Things that were so important before seem so silly now.